Still Congested

Kyle has continued having a rough week since our appointment on Tuesday.  He has been congested every day.  Not nasal congestion, but lung congestion directly related to his inhaling of the Chloral Hydrate he took on Tuesday.

Right now I'm noticing the congestion the most during meals, during his nebs and when he starts crying.  I've upped his nebs to 3x/day, which was suggested by his CF clinic.  They also suggested I take him into the Pediatrician to have his lungs listened to, but luckily my mother-in-law is a Nurse Practitioner and is coming over after work to listen to him, so we can avoid taking him to the doctor.  She seems to think, like the CF clinic, that this will pass soon.  I really hope so.

I've decided that if he's still congested on Monday, I'm going to call the clinic and have them do a chest x-ray, just to be safe.

With every congested cough he has, my heart stops.  It's terrifying listening to him cough and heart breaking knowing there is nothing I can do to help him or clear it up any faster.  I've been trying to get him to run around and laugh because that tends to get him breathing a little harder, which in turn gets him coughing and I can tell by the sound that the coughs are productive.  He also swallows a little right after, too.  I just keep hoping he's not swallowing so much mucus that he ends up throwing up again.

CF is really starting to show itself and here I thought we might be able to keep any major symptoms dormant, since he was doing so well.  So much for wishful thinking.

I keep hanging on to hope that the new drugs they have in clinical trials will help with his specific mutations.  We read up on this article yesterday and it all sounds promising.  I remember when Kyle was first diagnosed, our CF nurse said she was hopeful a cure would be found in the next 5-10 years.  If we can only keep him healthy enough to benefit from new drugs, or better yet a cure, that's all I want out of life.  I keep telling God, do what you have to do to me, but save my little boy.  I would give anything, including my own life, for a cure to be found for him.